Health Impairments in Children and Teens

Marilyn Sue Shank

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What Is Cystic Fibrosis?
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St. Jude's Children's Research Hospital is a wonderful example of how research can be compassionately child-centered and highly effective.As Danny Thomas, the founder of St. Jude Children’s Research Hospital, said, “No child should die in the dawn of life.” Thanks to the research of outstanding children's research hospitals such as St. Jude's, the lifespan of children with potentially terminal diseases has greatly increased and many are being cured.
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Child Life Specialists empower children and their families while they are hospitalized. They help kids and teens through play, preparation, education, and self-expression.
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Fitting CF into Your Life Everyday
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Play Sickle Cell Slime-O-Rama 
What It's Like Growing Up with a Medical Condition
Provides housing so families can stay close to their hospitalized children
Ronald MacDonald House Charities 
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Sickle Cell Disease Association of America
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Support for terminally ill children and their families at home
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Help for kids with sickle cell 
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Resources and webinars
Information, support, forums, news
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Canadian Cystic Fibrosis Foundation
Treatment and Reseach
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Rock CF
Support for young people
Teaching Students with Health Impairments